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Publication - Statistics Publication

Scottish cancer patient experience survey 2015-2016: exploring differences in patient experiences

Published: 26 Sep 2017
Part of:
Health and social care, Research
ISBN:
9781788512510

Additional survey analysis which examines the relationship between the self-reported experiences of service users and a range of factors.

23 page PDF

1.7MB

23 page PDF

1.7MB

Contents
Scottish cancer patient experience survey 2015-2016: exploring differences in patient experiences
Annex A: Summary Of Results

23 page PDF

1.7MB

Annex A: Summary Of Results

Table A1: Factors significantly associated with responses to ‘Diagnosis’ questions

Diagnosis

Question

Positive Factors

Negative Factors

Length of time to wait before first appointment with a hospital doctor

Males;
Retired;

No care plan;
CNS not easily contactable;
cancer has come back/spread;
SIMD 3, 4 and 5;
Upper GI, Urological & Other;

Had all the information needed about the diagnostic test beforehand

Retired;

No care plan;
CNS not easily contactable;
cancer has come back/spread;
Vision, Physical dis., Learning dis.,
Multiple conditions;
Gynaecological;

Length of time waited for test to be done

Retired;

No care plan;
CNS not easily contactable;
UR3, UR5;
Upper GI, Lower GI, Urological, Prostate, Gynaecological;

Results were explained in an understandable way

-

16-54;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Hearing, Multiple conditions;
Head & Neck, Urological, Prostate;

Had been told could bring a family member or friend when first told had cancer

Males;

35-74;
No care plan;
Difficult to contact/no CNS;
Skin, Head & Neck, Lung, Urological, Prostate, Gynaecological, Haematological

Way were told had cancer

Males;

16-74;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Lung, Upper GI, Lower GI, Urological, Prostate;

Understood explanation of what was wrong

SIMD 5;

No care plan;
CNS not easily contactable;
cancer has come back/spread;
Haematological;

Given written information about the type of cancer when first told

Skin, Prostate, Haematological;

No care plan;
Difficult to contact/no CNS;
cancer has come back/spread;
Multiple conditions

Table A2: Factors significantly associated with responses to ‘Deciding Treatment’ questions

Deciding Treatment

Question

Positive Factors

Negative Factors

Treatment options explained before treatment started

-

25-34, 45-54;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Chronic pain, Multiple conditions;

Possible side effects of treatment(s) explained in an understandable way

Lung, Lower GI, Urological, Prostate, Haematological;

No care plan;
CNS not easily contactable;
cancer has come back/spread;
Hearing, Physical dis., Chronic pain, Other, Multiple conditions;

Offered practical advice and support in dealing with side effects of treatment(s)

Haematological;

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Told about any side effects of the treatment(s) that could affect in the future rather than straightaway before treatment started

Skin, Lung, Lower GI, Urological, Prostate, Gynaecological, Haematological;

No care plan;
CNS not easily contactable;
Chronic pain, Multiple conditions;

Involved as much as wanted to be in decisions about care and treatment

Skin, Lung, Lower GI, Haematological;

25-54;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Learning dis., Chronic pain, Multiple conditions;

Table A3: Factors significantly associated with responses to ‘Clinical Nurse Specialist’ questions

CNS

Question

Positive Factors

Negative Factors

How often got understandable answers when asked CNS important questions

SIMD 2, 4 and 5;

No care plan;
CNS not easily contactable;
Learning dis., Chronic pain,
Multiple conditions;

Table A4: Factors significantly associated with responses to ‘Support’ questions

Support

Question

Positive Factors

Negative Factors

Hospital staff gave information about support or self-help groups for people with cancer

Males;

No care plan;
CNS not easily contactable;
Chronic pain, Multiple conditions;
Head & Neck, Lung, Upper GI, Lower GI, Urological;

Hospital staff discussed/gave information about the impact cancer could have on day-to-day activities

Males;

Haematological;

No care plan;
CNS not easily contactable;
Learning dis., Chronic pain, Multiple conditions;
Urological;

Hospital staff gave information about how to get financial help or benefits entitled to

Lung, Upper GI, Gynaecological, Haematological;

No care plan;
CNS not easily contactable;
Urological;

Table A5: Factors significantly associated with responses to ‘Operations’ questions

Operations

Question

Positive Factors

Negative Factors

Had all the information needed about operation beforehand

-

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Member of staff explained how operation had gone in an understandable way afterwards

Males;

No care plan;
CNS not easily contactable;
cancer has come back/spread;
Multiple conditions;

Table A6: Factors significantly associated with responses to ‘Inpatient Care’ questions

Inpatient Care

Question

Positive Factors

Negative Factors

Groups of doctors and nurses didn’t talk in front of me as though weren’t there

Males;
SIMD 2, 4 and 5;

16-24;
CNS not easily contactable;
Physical dis., Multiple conditions;
Lung, Upper GI, Lower GI, Urological, Prostate;

Had confidence and trust in doctors giving treatment

Retired;

No care plan;
Difficult to contact/no CNS;
cancer has come back/spread;

Family or someone else close able to talk to a doctor if they wanted to

Retired;

No care plan;
CNS not easily contactable;

Had confidence and trust in nurses giving treatment

Males;

25-64;
No care plan;
CNS neutral to contact;
cancer has come back/spread;
Physical dis., Multiple conditions;
Head & Neck, Upper GI, Lower GI, Urological, Prostate;

Enough nurses on duty to provide care in hospital

Males;

25-64;
No care plan;
Difficult to contact/no CNS;
cancer has come back/spread;
Upper GI, Lower GI, Prostate;

Doctors and nurses asked name preferred to be called by while in hospital

Males;
Retired, Other;
UR2, UR6;
Head & Neck, Lung, Upper GI, Lower GI, Urological, Haematological;

No care plan;
CNS not easily contactable;
Non-white;

Given enough privacy when discussing condition or treatment

Males;

25-64;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Upper GI, Lower GI;

Found someone on hospital staff to talk to about worries/fears during hospital visit

Treated < 1 year ago;
Retired, Don’t work due to illness/disability;

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Hospital staff did everything they could to help control pain

-

16-24, 35-44;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Don’t work due to illness/disability;

Overall, felt treated with respect and dignity while in hospital

Males;

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Given clear written information about what should/should not do after leaving hospital

Males;
Work PT, Don’t work due to illness/disability, Other;

No care plan;
CNS not easily contactable;
Chronic pain, Multiple conditions;

Told who to contact if worried about condition or treatment after leaving hospital by hospital staff

Work PT;

No care plan;
CNS not easily contactable;
Not heterosexual;
Learning dis., Chronic pain,
Multiple conditions;
UR6;

Table A7: Factors significantly associated with responses to ‘Outpatient Care’ questions

Outpatient Care

Question

Positive Factors

Negative Factors

Found someone on the hospital staff to talk to about worries/ fears whilst being treated

Skin, Upper GI, Lower GI, Prostate, Gynaecological, Haematological;

No care plan;
CNS not easily contactable;

At last outpatients appointment, cancer doctor had all the right documents

-

CNS neutral to contact;
cancer has come back/spread;

Had all the information needed about radiotherapy treatment beforehand

-

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Given enough information about whether radiotherapy was working in an understandable way once treatment had started

Males;

No care plan;
CNS not easily contactable;
Treated < 1 year ago;

Had all the information needed about chemotherapy treatment beforehand

Haematological;

No care plan;
CNS not easily contactable;

Given enough information about whether chemotherapy was working in an understandable way once treatment had started

Lung, Lower GI, Urological, Haematological, Other;

No care plan;
CNS not easily contactable;

Table A8: Factors significantly associated with responses to ‘Home/ GP Care & Support’ questions

Home/ GP Care & Support

Question

Positive Factors

Negative Factors

Doctors or nurses gave family/ someone close all the information needed to help care at home

Males;

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Given enough care and support from health or social services during treatment

Males;

No care plan;
CNS not easily contactable;
Chronic pain, Other,
Multiple conditions;

Given enough care and support from health or social services once treatment finished

Males;

No care plan;
CNS not easily contactable;

GP given enough information about condition and treatment had at hospital

Retired;
SIMD 4 and 5;

No care plan;
CNS not easily contactable;
cancer has come back/spread;

GPs and nurses at General Practice did everything they could to support while having treatment

Males;

No care plan;
CNS not easily contactable;
Chronic pain, Multiple conditions;
UR2;

Table A9: Factors significantly associated with responses to ‘Cancer Research’ questions

Cancer Research

Question

Positive Factors

Negative Factors

Someone has discussed taking part in cancer research since diagnosis

25-64;
cancer has come back/spread;
Physical dis.;

No care plan;
Difficult to contact/no CNS;
UR2, UR6;
Skin, Head & Neck, Gynaecological;

Table A10: Factors significantly associated with responses to ‘General’ questions

General

Question

Positive Factors

Negative Factors

Different people in my treatment and care worked well together to give best possible care

Males;

No care plan;
CNS not easily contactable;
cancer has come back/spread;
Vision, Chronic pain, Multiple conditions;

Overall rating of administration of care

SIMD 2;

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Length of time to wait when attending clinics and appointments for treatment (overall)

-

16-74;
No care plan;
CNS not easily contactable;
cancer has come back/spread;

Overall rating of care

-

16-24, 35-54;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Vision, Chronic pain, Multiple conditions;


Contact

Email: Louise Cuthbertson, louise.cuthbertson@gov.scot

Phone: 0300 244 4000 – Central Enquiry Unit

The Scottish Government
St Andrew's House
Regent Road
Edinburgh
EH1 3DG