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Scottish Strategy for Autism: engagement analysis

Published: 26 Mar 2018

This document is the analysis of the autism strategies engagement exercise which took place from October to December 2017.

43 page PDF

4.3 MB

43 page PDF

4.3 MB

Contents
Scottish Strategy for Autism: engagement analysis
Appendix A – Samples of responses to Question 5: what one single thing could the Scottish Government do to improve autistic people's lives?

43 page PDF

4.3 MB

Appendix A – Samples of responses to Question 5: what one single thing could the Scottish Government do to improve autistic people's lives?

Below is a randomly selected sample of responses to question five our engagement exercise: what one single thing could the Scottish Government do to improve autistic people's lives?

  • Legislation, rather than a strategy, so that there are statutory obligations which must be met by education authorities, health trusts etc re the provision of services and supports.
  • Employ autistic people to evaluate sensory and social environments
  • Get it right at primary and academy levels! Provide more support and funding for these children to have good school lives
  • Make it easier to first get diagnosis, then set up support network for the parents, ensure adequate schooling with GIRFEC included more ASN teachers and schools
  • Put more money into autism.
  • Introduce ABA techniques and invest in the training of staff and education
  • It doesn't effect our family personally but make it easier for adults with autism to receive benefits, statistics show only a very small percentage of adults have a full time job, so if they are to live independently they should be given this chance
  • by forming autistic citizens panels for all public agencies which are made by autistic people
  • Listen to the person, parent, carer or person supporting them.
  • Adopt United Nations Convention on the Rights of Persons with Disabilities into Scottish Law.
  • a handbook which is Information for Adults following
  • Diagnosis of Autism Spectrum Disorder and children but made for each region in Scotland. would be a good starting point.
  • Secure. The. One. Stop. Shops!!!
  • Recruit a national independent Autism Champion.
  • Make autism friendly a standard offering rather than unusual offering.
  • Give people with a diagnosis of Asperger's Syndrome or Autism a direct automatic entitlement to PIP.
  • Parity of esteem - Ensure that a mental health disability is given equal priority as physical health. It is a chronic, life long condition that has a huge impact on people's lives.
  • Resources for adults with Aspergers who don't fit the obvious clinical priorities
  • Because the problems encountered by autistic people can be unique to them as individuals it is hard to say any single thing....a community focussed approach may help though
  • Open a disability dept. Run by people with disabilities who have had experience of the dark side of claiming help.
  • Please stop the medicals for conditions that don't change. The stress is unbearable.
  • RAISE AWARENESS!!!!!!!!
  • Give more employment opportunities, more access to further education, more autism awareness in public places
  • More accessability and autism friendly places for people to go to.
  • Help the families, once a parent has been told that their child has Autism, they are handed leaflets and told to go online themselves.they have no one to turn too, except Autism groups.
  • Promote Austim as a good thing not for people to avoid
  • Listen with an open mind. Respond with a heart.
  • Quick diagnosis and faster post diagnostic care which is relevant such as dietitics, sleep clinics, counselling and confidence building. Finance community support projects in each city.
  • Clearer pathways to assessment, diagnosis, post diagnostic support -- as individuals often advise they do not understand why this becomes embroiled within autism , mental health and learning disability, leading to frustration and confusion
  • Be realistic
  • Treat us the same as everyone else. We don't wish to be viewed as a subset of society - why would the government choose to single us out for special treatment? That only makes us feel more different than we already do!
  • Increase mental health services and support workers and access to these services
  • Recruit, or have the Scottish Parliament recruit an Independent Autism Champion for Scotland.
  • Raising awareness of ALL aspects of autism and comorbid disorders. Advertisement involving real people?
  • Provide independent advocates for all autistic people who are unable to advocate for self
  • Fast track diagnosis, and recognise pda when it is present.
  • Create a fund to enable autistic young people or adults to access further learning or training opportunities

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